In medical news, I had a few different tests done by a neurologist I'm now seeing. I got a transcranial dopler, an EEG, and an MRI done. The results all came back normal, but he's going to bring me back for additional testing since the headaches haven't subsided at all. He's prescribed me a few different pills to take to hopefully easy the headaches and my neurological symptoms in general. However, during the MRI he did find a small cyst on a gland deep inside my brain. It's benign and isn't causing any real issues so it can stay in there for now. He explained that the cyst may be the reason why I have such trouble sleeping. Where it's located in my brain helps to regulate both serotonin and melatonin, so sometimes people can experience a disruption in their circadian rhythm. It would make sense since I've always had issues with sleep. He's prescribing me something to both help with the headaches and hopefully assist with my sleeping habits. I normally take Ambien to help me sleep at night but I'm going to see how this new stuff works.
By way of my personal life there really isn't much to report. Nothing new has happened and I haven't really done much in a social sense. I've finished all of the Star Wars movies (excluding the sequels because they're apparently not worth my time) along with most of Mandalorian. I only have one episode left and I'm saving it for when I have the time to truly savor it. I moved on to Tron last night and it was honestly one of the worst movies I've ever seen. Mike insists Tron: Legacy makes suffering through the first one worth it, so we'll see.
As for work, it's been crazy. I work with Burger every day and I know his habits and behaviors and patterns. Yesterday I could tell he wasn't right and towards the end of the day he went completely catatonic on me while we were working. None of his files mentioned anything out of the ordinary by way of medical situations, so I figured maybe he was just extra tired or sick or maybe even a medication change we weren't aware of. Administration asked us the day before if he seemed tired and he didn't seem too bad until yesterday. We figured maybe it was a medication change, which isn't unusual in special needs kids. However, we later found out that what I saw was him having a seizure. No where in his paperwork did they mention his history of seizures. If I would have known he had had seizures in the past I would have automatically known he was having a petit mal seizure and called for help. But because they kept information from us we had no idea. It's extremely frustrating knowing that I witnessed a serious medical episode and had no clue. I know it isn't logical, but I somewhat blame myself for pushing him so hard previously in the day. I don't baby him and make sure I push him to put in the work at school. I feel bad for pushing him how I did because the stress or aggravation from that could have helped to trigger a seizure. He's in class today which I totally disagree with. He should have been taken to a doctor or hospital to make sure he was alright. I feel like people shrug him off because he's nonverbal and figuring things out can be difficult if you don't really know him. All I can do is love and care for him while he's with me at school. I met with my supervisor and the teacher in my classroom about the incident and I made it clear that the nurse didn't do her job when evaluating him. Training is going to be put into place regarding how to deal with his seizures if another one were to occur. I don't want to rant, but it truly does bother me to think that the medical professional on site basically shrugged me off because he didn't have a fever and looked alright afterwards besides being tired. I took him to the nurse after it happened and she didn't seem to take it seriously. I told my supervisor that it may be because he's nonverbal and she didn't want to take the time to really work with him to figure out the issue. He's my kid and I work with him every single day. At this point I've worked 1:1 with him for hundreds of hours. I know how he acts and behaves. If I tell you he isn't right, he isn't right. I genuinely love that boy and it infuriates me to think that he could have gotten hurt or had serious issues afterwards that the group home and his own parents could have prevented or at very least helped. It was the group home that administered incorrect medication TWICE that led to the seizure. It aggravates me that he wasn't kept home to be monitored by medical staff after being given incorrect medication. The more I think about it the angrier I get, so I'm just going to cut it there.
Another work event was that of a mass shooting in the general area. A few days ago we had to go into lockdown protocol after a mass shooting happened and they suspected the shooter was headed our way. Trying to handle four special ed kids in one small corner for two hours was interesting to say the least. Eventually the lockdown was lifted when the shooter was caught, but it was wild going into actual lockdown protocol that wasn't a drill. We've done drills before and it's pretty mundane, but having an actual situation happen was a bit crazy. One of my worst nightmares is that school being shot up or something. It's a Jewish school and antisemitism is still alive and well, and special ed kids are easy targets. Luckily the school is pretty hard to get into from the outside if you don't have a keycard since there are multiple checkpoints, but where there's a will there's a way. Every morning and every evening all the staff and students are gathered outside loading onto buses going home for the day. I'd be lying if I said I never considered an active shooter situation. I feel like I'm starting to rant so I'll pull the plug on it.
Fun Fact of the Day - I can get obsessive with music and listen to the same band/song for weeks straight. Right now I'm going through a Mastodon and Korn phase with a sprinkling of Rage Against the Machine.
Here's a mix of songs I've scribbled down to share with you guys. Per usual, it's a pretty random and weird mix. Listen as you see fit and hopefully they provide you a bit of happiness. Maybe someone will even find their new favorite song. Either way, enjoy y'all.
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